2020-21: Genetic Technologies: Identity, Equality, Ethics

Films, Videos, Podcasts

“CRISPR gene-editing reality check,” NOVA, September 9, 2020

“The Ethical Dilemma of Designer Babies,” Paul Knoepfler TED Talk, October 2015

“The Gene,” 2020, produced by Ken Burns and Barak Goodman

2-part PBS documentary: “Dawn of the Modern Age of Genetics” and “Revolution in the Treatment of Disease”

“How CRIPSPR lets us edit our DNA,” Jennifer Doudna TED Talk, September 2015

“Human Nature,” a 2019 documentary film that tells the story of CRISPR, by Dan Rather and Adam Bolt

“Update: CRISPR,” Radiolab, February 24, 2017

“Use Gene Editing to Treat Patients, Not Design Babies,” Marcy Darnovsky TED Talk, January 2020

“What you need to know about CRISPR,” Ellen Jorgensen, TED Talk, 2016

Short Publications

Roberto Andorno, Françoise Baylis, et al, “Geneva Statement on Heritable Human Genome Editing: The Need for Course Correction,” Trends in Biotechnology, April 2020

Bryan Cwik, “Revising, Correcting, and Transferring Genes,” The American Journal of Bioethics, vol. 20, no. 8 (2020)

Angelina Jolie, “My Medical Choice,” New York Times, May 14, 2013

Books

Françoise Baylis, Altered Inheritance: CRISPR and the Ethics of Human Genome Editing (Harvard University Press, 2019)

Adam Cohen, Imbeciles: The Supreme Court, American Eugenics, and the Sterilization of Carrie Buck (Penguin, 2017)

Jennifer A. Doudna and Samuel H. Sternberg, A Crack in Creation: Gene Editing and the Unthinkable Power to Control Evolution (Mariner, 2018)

George Estreich, Fables and Futures Biotechnology, Disability, and the Stories We Tell Ourselves (MIT Press, 2019)

John Evans, The Human Gene Editing Debate (Oxford University Press, 2020) 

Sheila Jasanoff, Can Science Make Sense of Life? (Polity, 2019)

Evelynn Fox Keller, The Century of the Gene (Harvard University Press, 2002)

Paul Knoepfler and Julie Knoepfler, How to Build a Dragon or Die Trying: A Satirical Look at Cutting-Edge Science (World Scientific, 2019)

Siddhartha Mukherjee, The Gene: An Intimate History (Scribner, 2017)

Alondra Nelson, The Social Life of DNA: Race, Reparations, and Reconciliation after the Genome (Beacon Press, 2016)

Erik Parens and Josephine Johnston, eds., Human Flourishing in an Age of Gene Editing (Oxford University Press, 2019)

Jenny Reardon, The Postgenomic Condition: Ethics, Justice, Knowledge After the Genome (University of Chicago Press, 2017)

Dorothy Roberts, Fatal Invention: How Science, Politics, and Big Business Re-Create Race in The Twenty-First Century (The New Press, 2011)

Camisha Russell, The Assisted Reproduction of Race (Indiana University Press, 2018)

Alexandra Minna Stern, Telling Genes: The Story of Genetic Counseling in America (Johns Hopkins University Press, 2012)

Kim Tallbear, Native American DNA: Tribal Belonging and the False Promise of Genetic Science (University of Minnesota Press, 2013)

Alice Wexler, The Woman Who Walked into the Sea: Huntington’s and the Making of a Genetic Disease (Yale University Press, 2008)

Alice Wexler, Mapping Fate: A Memoir of Family, Risk, and Genetic Research (University of California Press, 1996)

Ed Yong, I Contain Multitudes: The Microbes Within Us and a Grander View of Life (Ecco, HarperCollins, 2016)

Organizations

Center for Genetics and Society, https://www.geneticsandsociety.org/